Life and Death

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Important note before reading this week’s entry:

Brittany Maynard, one of the two subjects of this blog, chose to end her life on Saturday at her home in Portland.  Little did I know that the day I was writing this entry, she was taking the very action she had fought so publicly for.  Rather than edit  what I have written to focus on her death, I think the better way to honor Brittany’s bravery is to leave the words intact and focus on the positive examples both Brittany and Nurse Kaci Hickox, still alive and well in Maine, are providing to the world – not to mention our 24/7 news cycle.

Ok – now back to our regularly scheduled programming…

No one wants to get Ebola because no one wants to die. Well, most of us that is. But on the opposite ends of the country two very different yet quite similar young women this week helped lead the way in our continuing understanding of life, death and all of the messy stuff in between.

In Maine, we have a 32-year-old nurse named Kaci Hickox and in Portland, Oregon, at least for now, there is 29-year-old newlywed Brittany Maynard. Both want to continue their lives the way they choose. It’s just that in the case of Brittany, who has advanced Stage Four brain cancer, that means having the freedom to decide when to die. And with Kaci, who recently returned from West Africa after caring for a 10-year-old girl dying alone of Ebola, it’s simply about the freedom to ride her bike in the woods rather than endure quarantine in a makeshift New Jersey medical tent sans plumbing or at an undisclosed government chosen hospital somewhere inside the Pine Tree state.

I know a good place to hide away

I know a good place to hide away

I refer to each of these young women by their first names. Which only seems fair since they have also chosen to let us get to know them in unusually intimate ways. Also, since it makes them feel more like real people rather than merely names in the news, and being I admire them both greatly, well – I figured it’s the least I could do.

Ebola, ebola, ebola, ebola, ebola. Something about the way it sounds even feels dangerous, doesn’t it? Or at the very least exotic or unknown. Which most certainly makes it scary. Well, any disease that can kill you is frightening, especially when you didn’t ask for it or even put yourself at risk for it. Not that the latter matters. Or does it? I mean, no one made Kaci go to Eboland, right? Why should the rest of us have to suffer for her nobility?

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Let’s get something straight about science – medical, environmental or otherwise. It is, all of it, based on facts as we know them at the time. For instance, I could have told you with all certainly that the world was flat several thousand years ago and pretty much you would have taken it for granted as true. However, all these centuries later it has been proven time and again that we live in a round world so what is true changed based on research. Is it then possible 500 years from now science will shift and prove the world is really shaped like a question mark? Well, of course anything is POSSIBLE but it hardly seems likely based on what we have learned over the last 2500 years. Although given the popularity of absolutist thinking lately, I do fear for the extinction of question marks of any kind.

The overwhelming consensus in the scientific community at the moment on Ebola is that it is a virus that is transmitted from one human to another through direct contact (broken skin/eyes, nose or mouth) with bloody or bodily fluids (urine, saliva, sweat, vomit, feces, breast milk, semen) with a person who is actively sick or through objects like syringes and needles. It is not airborne unless a current Ebola patient who is actively ill and who has a fever pries open your mouth and spits (or does worse) directly into it.

Ewwwww

Ewwwww

Many Republican conservatives have voiced the perils of those with the Ebola virus riding the subway or bus systems and randomly infecting the rest of us innocents just because they were too careless to stay home. Certainly, that is even what the scared, poor old bleeding heart liberal me at first thought until I took off my hypochondria hat and considered – when was the last time anyone threw up, bled or deposited their semen directly into my nose or mouth on the bus or subway? I suppose they could sneeze into my mouth or nose if I didn’t watch myself but they’d have to be actively sick and sweating with a high fever and I don’t tend to sit or even stand directly next to those people in public places, given the kind of weirdo I am. Plus, there is always Purell.

I really don't look good in yellow

I really don’t look good in yellow

Unfortunately, I remember this type of panic exactly three decades ago around a disease called AIDS. I also recall as if it were yesterday the now 20 plus years dead but then 13 year old boy named Ryan White who was thrown out of his school by alarmists for being HIV positive even as he lived six more years to infect no one. Not to mention Conservative icon William F. Buckley, Jr. going on TV at the time and suggesting young dying gay men and IV drug users in New York, and presumably very young boys like Ryan White elsewhere, be tattooed and quarantined – sort of the way they were in Nazi Germany 40 years before that. Lovely.

If that sounds as if I’m being unfair, I am not. Yes, of course I am biased. But in this case, I am simply reporting on the facts at that time. Just like you can’t un-infect yourself from a virus you can’t change the reality of the past three or ten decades later simply because it is embarrassing. Of course, you can cure a virus with knowledge the scientific community has uncovered. Much in the way you can re-educate yourself and change your way of thinking to something a bit more rational and factual. That is if you choose to do so.

Which brings us to Brittany Maynard.

Happier times

Happier times

Here is a vibrant young California woman who was just married and by all accounts smart, happy and active, diagnosed in the late stages of a lethal brain tumor that will end her life with a barrage of unrelenting headaches, a loss of motor skills and certain death in less than a year. Numerous doctors told her that her case is accelerating rapidly and that not only is there no cure but little respite they can promise her from an extremely painful and severely mentally debilitating decline.

After some thought and consultation with her doctors and loved ones, Brittany made the decision that was right for her and she and her husband moved to Oregon where euthanasia is legal. What that means is a doctor can legally prescribe Brittany a small lethal dose of pills and, if she choses to take them, can end her life in a manner of minutes privately and painlessly.   Now that wouldn’t seem to be all that controversial, would it?

Well, it turns out that it is and that even with a debilitating brain tumor Brittany was smart enough to be one step ahead of all the protestors. So she decided to post an online video explaining her decision at some length, which, to her and everyone else’s surprise, quickly went viral and has now received over 6 million hits. Wow. That’s a lot of interest. Makes you even think some of those people actually realize that they too, like Brittany, just might be faced with a similar end of life decision at some point in their lives where they just might want to explore a similar option.

Well, that would be quite cowardly, or at least not brave, according to a 30 year-old man with a brain tumor named Phillip Johnson. A Catholic seminarian from the Diocese of Raleigh, N.C. who six years ago was diagnosed with a similar though not entirely identical brain tumor, Phillip came out quite vehemently and quite publicly against Brittany’s own end of life choices in a widely read though not quite as viral article 10 days ago. Here are just a few excerpts:

Suffering is not worthless, and our lives are not our own to take.  As humans we are relational – we relate to one another and the actions of one person affects others.  Sadly, the concept of “redemptive suffering” – that human suffering united to the suffering of Jesus on the Cross for our salvation can benefit others – has often been ignored or lost in modern times. 

There is a card on Brittany’s website asking for signatures “to support her bravery in this very tough time.”  I agree that her time is tough, but her decision is anything but brave.  I do feel for her and understand her difficult situation, but no diagnosis warrants suicide.

I will continue to pray for Brittany as she deals with her illness, as I know exactly what she is going through.

Gee Phil, and I thought only God himself (or herself) can only really know all the true experiences of all the men, women and beasts in the world.

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I try not to write much about religion unless it has to do with fundamentalists who are determined to bring their way of thinking into the mainstream and that is only because they leave no room for any dissenting thought. Whether it’s done for selfish dogmatic reasons or in the name of a loving God whose word you are determined to spread because part of your religion, you believe, makes it your mission, it’s never proper to order others to adhere to your way of life en masse or judge them harshly as long as they are not hurting anyone else. Still, it does puzzle me why anyone would go out of their way to so publicly object to how a terminally ill patient chooses to end their life and why that anyone would do it in the name of God. As a NY Jew who for 27 years has lived with an Italian Catholic who did quite well as a boy in Catholic school, I’m here to tell you that even God wouldn’t like it. To wit: here’s the one Bible passage my former altar boy taught me that I can actually remember.

John 8:7: Let he who is without sin cast the first stone.

In the name of Brittany, take that, Phil. Not that she needs my help – at least not on that score.

As for me, I choose to think about it this way. I’m not going to use Kaci for a blood transfusion or a bedmate but I would be happy to hug her in thanks for the selfless way she chose to fight a deadly virus at its source. Not to mention, if she were in town I’d happily invite her over to my home for dinner and an evening of crazy 8s. I’d do the same for Brittany if she were well enough to travel or had the strength to have me over. Though perhaps I would give her a blood transfusion if she needed it. Which might not happen since because of AIDS gay men are still forbidden from donating blood to non-family members and most certainly to those we don’t know. We are all, each and every one of us gay guys, in the high-risk category despite our HIV statuses. Yup, there are some things we as a society still just don’t grow from. But perhaps one day we will. In time. How fortunate for those of us who still have that luxury, and for those who decide to fight for it.

Future Perfect

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If there were a sheet of paper you could take a peek at that would tell you the future, what would you do?  Oh, of course you’d take a peek.  You couldn’t help yourself.  Don’t say you wouldn’t.  You would.

The future is on the minds of college students at this time of year – the end of a semester – especially those about to graduate.  Smart or lazy (which is the opposite of smart), mellow or tightly wound, they often wonder one basic question – WHAT. WILL. BECOME. OF. ME??????

Of course, this is a question many of us all ask ourselves periodically – as if a single answer exists or one answer would ever be adequate.  We don’t know what the years will bring and, aside from being scary, that’s the great thing about it.  Literally anything can and will happen – and often hanging on the slightest moment.  Which is what makes the future something not to dread but to embrace.  Especially since there is no way to forestall getting some horrible disease or being hit dead by a drunk driver if you happen to be walking or even standing in the wrong place at the right time.  Yes, I went there.

Since life is a big question mark in general, one’s career and creative existence should certainly follow suit.  Yet many of us, myself included, often don’t see it this way.  We act as though there should be some guarantees – or that we are at least owed or entitled to them.   Something along the lines of Apple Care in case things go terribly wrong.

And then some things are beyond Apple Care

And then some things are beyond Apple Care

Students are terrified to take the wrong step, accept the wrong opportunity, write about the wrong thing – not make the wisest choice that will get them the farthest.  I suffered from this myself until I grew weary of worrying and, well, just got too mature (old?) to spend as much time worrying anymore.  I mean, at some point, if you’re very lucky, you get to the place where the amount of time ahead of you is less than the amount of time behind you – and you realize – there is no point in beating myself or anyone else up about the small stuff.  There is only time to embrace the future and the unknowns – both good and bad – that it holds.

And yet – who doesn’t worry?  These students, me, you, our friends?  One dear diehard movie fan friend of mine truly worries if The Wolf on Wall Street will live up to the hype, and even fears backlash against the already award-winning American Hustle. Personally, I just don’t want to be disappointed by Saving Mr. Banks even though I know it can’t live up to the expectations of this lifelong Mary Poppins fan (yes, I did sit with my Dad at the movies in the Bronx as a little boy, riveted to the screen as I watched MP in wonderment, and then went home and played the record over and over again in my room as I sang along to every song – get over it!!!).

I'm counting on you Tommy!

I’m counting on you Tommy!

I’m also concerned for Jon Hamm not ever winning an Emmy award for being Mad Men’s Don Draper (and not even being nominated for a Golden Globe this past week).  Truly.  Not in the same fashion I fear a loved one of mine could get a cancer recurrence or that I myself will have to one day go through the tooth extraction I managed to dodge last week when only a mere root canal and crown were in order.  Of course, there are even far deeper levels of concern.  We are only beginning to scratch my surface here.  No use continuing on into a downward dog from which I can’t guarantee we will ever emerge – especially in L.A.

Still – and to look on the bright side – I (and hopefully you) don’t worry anymore that Pres. Obama will be shot or that either Michelle Bachmann or Sarah Palin will assume any real leadership role in our country’s foreseeable future.  Those ships have sailed.   Though do not take this to mean I am not also sure that the world has gone crazy and that one day I will be only one of the handful of sane people engaged in pubic discourse left standing…and that, quite quickly, I will become overrun.  Long ago I realized there is a difference between worrying about the future and simply accepting a certain fatalism in life.

I attempted to explain a toned down version of all of this recently to one angst-ridden student in my office. This young person is non-white and couldn’t help but fear racial discrimination in the future from the Hollywood establishment based on some dealings they had observed in various workplaces over the past four months.   I listened. Nothing exactly solid had happened but enough had occurred not to be discounted.  To boil it all down, this student’s question eventually became this:  How does one avoid being treated as “the other” when, in some people’s minds, one is, and will always be, the other?  Or, to put it another way – An Outsider?

Not just a kitschy SJP 80s sitcom

Not just a kitschy SJP 80s sitcom

Hmmm.  Excellent question.  And certainly one for the ages.  Especially our ages.

I tried to take the adult line and explain that progress in these areas happen at a snail’s pace but, eventually, does occur for the better.   And that you can’t worry about stuff that can happen, only deal with things as they do happen.

For instance, I argued, as a young gay man I couldn’t even conceive of a future with gay marriage.  I mean, there wasn’t even a word for what is occurring now in the not so distant era I grew up in.  Also, the fact that I, a teacher, could even be open with a student about my life in this way these days was certainly progress.  But then I remembered and shared what happened more than 25 years ago on a movie I worked on in the late eighties.  And, as we know, movie stories are so much more resonant to people than any real life experience or observation.

I was employed as a publicist on a film that was produced by a very large company headed by a very-well known producer in Hollywood  – someone who is still quite well known and who very publicly campaigned for and supported the then very conservative U.S. Pres. Ronald Reagan.  The production coordinator of this movie, a Mercedes-driving middle-aged woman who came to work each day wearing very expensive jewelry and an extremely superior attitude – saw me in the office one Monday with a tan and personage that, I can only assume, was reeking of homosexuality.  Because looking at my tan and somehow knowing that the Annual Gay Pride Parade had been held outside the day before in the very hot West Hollywood sun, I caught this woman snidely winking at her friend and then nodding in my direction, as she bellowed from her desk across the room, sweet as pie but in a somewhat accusatory manner to me and my overly suntanned face:

“SO…STEVE….where were YOU this weekend.  I’ll bet it was at some sort of (another wink wink to her friend) ….PARADE?????”

Say what now?

Say what now?

Trust me, I am no Martin Luther Queen.  But this was the eighties, I had just received news that a dear friend of mine in NY had AIDS and my face was on fire because, as you may or may not know, I have a very, very pale Jewish complexion that does not do well in the harsh daylight and my skin was beginning to blister. In short, this was no time for Diamond Lil to fuck with me.

Uh, yes, I was at the parade this weekend, I bellowed back.  Is there a problem with that? Or, more specifically– do you have a problem with that?

I was steely outside but inside was shaking with fear and rage.  What was I thinking?  As much as I found this woman and everything and everyone in this office at the moment sickening and disgusting, I needed this job. But then — suddenly, the office got very quiet.  The friend she winked at turned away.  Copy machines stopped. Overweight teamsters, some of whom I found out later had borne the wrath of Diamond L’il herself, stood stationary.  I spied from the side a quite young gay intern who, I was quite sure, had just turned pink.

No, DL said in a clipped tone, I just don’t see why THEY  (or was it THOSE PEOPLE) need to be treated special.  They’re not anything special.  Why do they (or did she mean ME?) get a parade??

I will spare you Gay 101 from 1987. And my telling her I was one of Them (like she didn’t know).  Needless to say, the farthest I got with her was some continued grumbling that they still don’t deserve to be treated special and be a spectacle.   Along with some very nasty glares.   At which point she averted her eyes away from me – then and forever more.

Move along, lady

Move along, lady

Some days went by and, as I suspected, I was reported for insubordination to all of my bosses and she attempted to get me fired.  But my direct female superior had a gay best friend and mentor ten years older than me who at the time was actually dying of AIDS – so that didn’t get her very far.  Though I did get a thank you from the gay intern who said he admired how I handled Diamond L’il  (not her real name).  Plus the bonus reward of a smile from almost everyone I greeted in the production office for the rest of the shoot of one of the dumbest 1980s studio movies ever made.

These types of altercations still do occur today in some places but it is highly unlikely anyone will ever encounter them again in the production office of a major studio film. Nor the remarks I once heard in the later eighties in the offices at another major studio.  This time from a development executive with a Mexican last name who informed me in front of his staff at a meeting that the Mexican families living in the poor neighborhood I wrote about in a spec script he liked were just plain stupid people who didn’t have the brains to get organized in the way I had written about even though the events in my script were based on real individuals in an actual Mexican neighborhood in Los Angeles.

Yes, one could argue a few ignoramuses continue to think this way but they are quite rare and, most certainly, they would not feel safe to act out in this fashion in today’s Hollywood.   Which, one supposes, is some progress in itself.  In any event, certainly both stories were enough to make my student smile just a bit and then proceed out of my office and into the world with the notion that the future can hold all kinds of unforeseen changes for the better and shifts in opportunities one could not have imagined.

How the student left my office... I imagine.

How the student left my office… I imagine.

Speaking of the future, I’m reminded of one last story of a wonderful young woman I met some years after Diamond L’il – someone who is now a quite famous producer on her own but at the time was a junior executive at a major company who set up a meeting with me through my agent because she was a fan of my writing work.  (Note: It was a good meeting though it was more of a general meeting – the kind I later realized that you go on with either new material in mind or a carefully honed pitch rather than with the agenda of getting your ego stroked by people who like your work and who you perceive will then automatically give you a job).

In any event, this woman and I had a great talk – actually a fantastic talk about a script of mine she really liked – and about movies, her company’s films, and the state of the biz in the nineties.  She shared honestly about her company and the Oscar winning producer/director she worked for while I asked her questions about several movies they had produced that I admired.  One film, in particular, was my style and something akin to what I’d like to write.  At this point this woman turned to me and told me something I never did quite forget.

I’m going to be honest with you and say something that you probably don’t want to hear,” she said.

Okay, I replied, go ahead – I can take it.  Honestly.

It’s just that – the film you mentioned, and the kind of script it was – the kind of scripts that you want to do – nobody cares about that kind of writing anymore.

Oh, you mean those small, sensitive, coming of age, love/friendship stories, I thought.  But I said nothing and sat there in stunned silence.

I don’t mean to say I don’t admire and appreciate them, she continued. I’m just being brutally honest about where the business is going.  Where the studios are.  And if you tell anybody I said this, I’d probably deny it publicly. I just wanted to tell you.

Sort of tongue-tied I looked at her and lied – Well, I really appreciate your honesty.

Don't mind the clothespins!

Don’t mind the clothespins!

I couldn’t tell you what happened at any point after she said that because for all intents and purposes the meeting was over.  I blanketly rejected in my mind what she was saying about the future.  Surely, studios and everyone else will always find a place for sensitive, well-written scripts, I reasoned.  She’s just been burned – or is getting burnt out.  I know that doesn’t apply to me and the kind of work that I want to do.

Well, who knew I was in a meeting with an Oracle who would turn out to be so right – though not entirely correct.  She left out the future world of cable television, independent movies and the emergence of the Internet and social media.  Still, she saw the writing on the wall and I didn’t want (refused?) to believe her future.  I feared it and tried to deny it, rather than embrace and accept it.

I didn’t share this last story with my student because I didn’t remember it until the student had left.  And there is no use scaring someone so young with a brutalized version of the truth when merely an evenhanded version of its entirety will more than adequately do.

But that evenhanded version it’s always worth knowing, considering and recognizing.   Regardless of age, point of view or position in life.